On Thursday, August 3rd, the Right To Try Bill which carries the name of ALS patients Tricket Wendler, Jordan McLinn, Frank Mongiello and Matt Bellina, has passed in the US Senate. It now proceeds to the US House of Representatives for passage. In the House the bill enjoys the effective support of our Representative Brian Fitzpatrick who will foster its successful journey to the desk of the President.
Matt Bellina of Holland, PA was diagnosed with ALS in 2014 at the age of 30. Matt is a Retired Naval Lieutenant Commander and has a wife, Caitlin, and 3 young sons. Matt, with the support of the Have a Heart Foundation, which is supported by the Newtown Athletic Club, has been advocating for the Right to Try bill for over 3 years. He has testified in Washington, DC multiple times, met with VP Pence and President Trump, written countless articles and had several videos made of his story.
When Matt joined the Newtown Athletic Club (NAC) in 2015 he connected with their Have a Heart Foundation and owner Jim Worthington, who took up Matt’s cause with a relentless determination. Matt, together with other families and support groups, both locally and nationally advocated for the Right To Try with determination, never giving up.
Today’s Senate victory is so sweet because now 30 million terminally ill patients in America will have this bill to support their efforts to access experimental drugs that have passed Phase 1 FDA trials before it is too late for them.